Maryclare Kolb has beta thalassemia, a blood disorder that reduces the production of normal hemoglobin in the body. Her treatment includes a blood transfusion every three weeks.
“Maryclare needs her blood transfusion to have a healthy life and grow and develop like other children,” said Edward Kolb, Maryclare’s father.
Thanks to blood transfusions, Maryclare gets to enjoy her favorite activities – singing and playing soccer.
She was born in south China and was adopted and came to the U.S. when she was 4. She hadn’t received transfusions prior to arriving in the U.S. and it had impacted her growth. As a 4 year old, she only weighed 30 pounds. She had an emergency blood transfusion and was hospitalized overnight when she arrived in Omaha. That was the first of many blood transfusions for Maryclare, who now receives blood transfusions regularly. And, Maryclare can tell when it is almost time for her next transfusion. Her mom said that there are times when Maryclare will tell her that she is tired and needs a transfusion.